Werd. Not to say there's anything wrong with alternative medicines at all but one must balance the claims with the knowledge that these products are pushed primarily towards patients with in many cases terminal illnesses. ie. people who have nothing to lose. Everyone is free to believe what they want - well except in Muslim countries where you get stoned to death if you convert to Christianity, but that's another discussion for another day entirely - but you need to keep an open mind for the possibility, no matter how remote, that these miracle cures just might be some less-than-respectable person's get rich quick scheme targeting people who aren't going to be suing you or claiming their money back if the product doesn't work as advertised.Velocewest wrote:Last year it was Polynesian Noni juice, now it's Himalayan Goji juice. Every year there's a new pyramid scheme with a new wonder juice...BAVARIANUT wrote:This may sound like I'm pushing the Goji product, but get her on the juice.
Blissful remission (lymphoma update - 12/17/06)
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BAVARIANUT
- Posts: 1422
- Joined: Apr 10, 2006
- Location: the Nutmeg state
Have you heard of Dr. Vega the oncologist.. Look him up and his studies about the berry.. I do not have time right now..Velocewest wrote:Last year it was Polynesian Noni juice, now it's Himalayan Goji juice. Every year there's a new pyramid scheme with a new wonder juice...BAVARIANUT wrote:This may sound like I'm pushing the Goji product, but get her on the juice.
My wife is using an herbalist as part of her complimentary therapy, but he isn't promising any miracles nor offering any cures. He's addressing her nutritional needs and offering treatment to address the nausea, anemia and low white blood cell count, and he's working hand in hand with the oncologist to avoid counterproductive treatment. You can feed a tumor, you know.
I'm not criticizing anyone's choice to take a supplement, but we're talking about the Big "C" here -- unless her oncologist approves it, Ben's girlfriend shouldn't include it in her diet.
I'm glad you said that -- I was definitely thinking that. If you (or the juice proponents) want me to break out their posts into a new thread, I will do that.BKCowGod3 wrote:Can we not turn my thread into an argument about which juice is better? I know you all have good intentions, but I have heard them now.
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BAVARIANUT
- Posts: 1422
- Joined: Apr 10, 2006
- Location: the Nutmeg state
Sorry, I am not trying to disrespect your thread, I wish the best for Leisa's speedy recovery. I am trying to help, speeking from my experiences. I have seen loved ones go through hell, because of drugs including chemo therapy "which work to destroy the body to remove tumors". I believe strongly that there are other, safer methods of therapy out there that are not as popular for the simple reason that it is not a controled drug from the FDA.. I see more comercials promoting drugs these days than anything else. And everyone has side-effects and again are controlled substances. Not of this earth. Natural methods of healing the body, are the best long term answer to staying healthy and keeping are bodies in the best condition to resist disease and illness....
Ah, the saga continues. We are getting used to the treatment schedule, I am getting used to finding her hair all over me, and she is getting way more used to nausea and headaches than any human ever should. Anybody got some pot?
Anyway - just wanted to shoot off a quick update since it has been a while. We still appreciate all the wonderful stories and words of encouragement. I feel horrible that I have not had time to respond to individual emails, but please know that we are both truly touched by the care expressed by members of this community. This thread alone should serve as proof to any doubters that we have created more than just a website but a living, breathing entity whose core is made up of a bunch of truly wonderful individuals...
Possibly the last haired picture for a while (I'm thinking of waxing my unibrow as a sort of sympathy thing)
Anyway - just wanted to shoot off a quick update since it has been a while. We still appreciate all the wonderful stories and words of encouragement. I feel horrible that I have not had time to respond to individual emails, but please know that we are both truly touched by the care expressed by members of this community. This thread alone should serve as proof to any doubters that we have created more than just a website but a living, breathing entity whose core is made up of a bunch of truly wonderful individuals...
Possibly the last haired picture for a while (I'm thinking of waxing my unibrow as a sort of sympathy thing)
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Alan Crane
- Posts: 106
- Joined: Mar 22, 2006
- Location: Australia
BK- understand how you feel and can never know how she feels.
15 years after my lady was given a 5 year live expectancy we still live and laugh every day.
have a law suit pending- the surgeons removed 3/4 of her tongue, BUT left the bit that makes all the noise!! The surgeon said he realised his mistake as soon as the anaesthetic wore off!!
Use what you can to do what you can... being there is THE most important thing for both of you
Luck and wishes to both of you
15 years after my lady was given a 5 year live expectancy we still live and laugh every day.
have a law suit pending- the surgeons removed 3/4 of her tongue, BUT left the bit that makes all the noise!! The surgeon said he realised his mistake as soon as the anaesthetic wore off!!
Use what you can to do what you can... being there is THE most important thing for both of you
Luck and wishes to both of you
BK, glad to hear things seem to be going OK. She's lucky to have you by her side. I can only imagine this will bring the two of you closer.
I once knew a woman who was diagnosed with cancer. She came home one day to a note from her husband saying he wanted to remember her the way she was - he just walked out.
Once you two get throught this she'll know you've got her back no matter what. That's something words and money can't buy.
I once knew a woman who was diagnosed with cancer. She came home one day to a note from her husband saying he wanted to remember her the way she was - he just walked out.
Once you two get throught this she'll know you've got her back no matter what. That's something words and money can't buy.
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rlomba8204
- Posts: 4869
- Joined: Feb 12, 2006
- Location: Washington, DC
My wife and I will keep you both in our prayers. God bless you both.
The only good thing about this is that you will both have a new appreciation of the fact that none of us should take any day for granted, and given her youth, and today's wonderful medical technology, you will both be able to apply this life lesson for decades to come.
The only good thing about this is that you will both have a new appreciation of the fact that none of us should take any day for granted, and given her youth, and today's wonderful medical technology, you will both be able to apply this life lesson for decades to come.
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Velocewest
- Posts: 1558
- Joined: Feb 12, 2006
- Location: UK
It works. Ask my wife. And it has the added benefit of being a mood enhancer, and stimulating appetite.BKCowGod3 wrote:Ah, the saga continues. We are getting used to the treatment schedule, I am getting used to finding her hair all over me, and she is getting way more used to nausea and headaches than any human ever should. Anybody got some pot?
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Velocewest
- Posts: 1558
- Joined: Feb 12, 2006
- Location: UK
Ben, by way of celebrating some good news, let me offer you and Leslie some optimistic tidings. Jessica had a PET scan last week following her 4th round of chemo, so two months into treatment. For ref, she has Hodgkins Lymphoma and was stage IIa when diagnosed, and is doing ABVD protocol. Her Oncologist delivered the results Wednesday, and as of now, there is no uptake of the indicator shown on the PET -- in other words, no live cancer cells of enough significance for the PET to reveal them. She is offically in remission.
As you might imagine, I'm just a little happy right now...
:alright:
She'll continue chemo, because a clean PET at two months is good news, but there is still a significant chance that there are miniscule or dormant areas of cancer that have not been wiped out. No one talks "cure" until 5 years with a clean PET scan, until then you're just in remission.
Anyway, tell Leslie to keep her spirits up and believe in a positive outcome, because that's where she's headed!
As you might imagine, I'm just a little happy right now...
:alright: She'll continue chemo, because a clean PET at two months is good news, but there is still a significant chance that there are miniscule or dormant areas of cancer that have not been wiped out. No one talks "cure" until 5 years with a clean PET scan, until then you're just in remission.
Anyway, tell Leslie to keep her spirits up and believe in a positive outcome, because that's where she's headed!
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Bimmerguy2002
- Posts: 11973
- Joined: Oct 03, 2007
- Location: Lodi, California
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Tim in N FL
- Posts: 7392
- Joined: Feb 12, 2006
- Location: North Central Florida, USA
- Contact:
Hey Ben,
Thanks for sharing the update and the great photo of you two lovebirds
Very nice to see it....but from what I can tell, my friend, you're falling down on keepin' that unibrow waxed. 
Tony,
Congrats on the good news concerning your wife's remission! Keep us posted...
TACM (Steve),
How is Isha doing of late? Last I heard, she too was in remission from her leukemia.
In the meantime, will be keeping everyone in my thoughts and prayers.
Sincerely,
Tim
Thanks for sharing the update and the great photo of you two lovebirds
Very nice to see it....but from what I can tell, my friend, you're falling down on keepin' that unibrow waxed. Tony,
Congrats on the good news concerning your wife's remission! Keep us posted...
TACM (Steve),
How is Isha doing of late? Last I heard, she too was in remission from her leukemia.
In the meantime, will be keeping everyone in my thoughts and prayers.
Sincerely,
Tim
)Merry Christmas to everybody, but especially Leslie... she is officially in remission as of the 14th! We couldn't have asked for a better present than that, and I realize every day just how much stronger she is than I could ever dream to be - she recently took some scissors and cut off the rest of her hair, and she was laughing about it the whole time. She is taking a leave from school, but has decided in the interim to teach herself business and psychology (my mom is a Psycho and my dad has an MBA, so they're loaning her books and knowledge) on her own time. We both are taking the truck camping every chance we get, and just basically enjoying every day to the fullest. Whenever I find myself complaining about a bad day at work, I look at the picture on my desk and everything snaps right back into perspective...
Well, I'm off to make tamales with her non-english-speaking grandma. I'm not on this board much anymore - winter in the mountains means driving the truck, which means I'm focusing more on the ExpeditionPortal lately, but I still wanted to wish everybody a happy and safe holiday...
Well, I'm off to make tamales with her non-english-speaking grandma. I'm not on this board much anymore - winter in the mountains means driving the truck, which means I'm focusing more on the ExpeditionPortal lately, but I still wanted to wish everybody a happy and safe holiday...
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Tammer in Philly
- Posts: 10719
- Joined: Feb 12, 2006
- Location: CHI, IL
Great news, Ben. Give her my best.BKCowGod3 wrote:Merry Christmas to everybody, but especially Leslie... she is officially in remission as of the 14th! We couldn't have asked for a better present than that, and I realize every day just how much stronger she is than I could ever dream to be - she recently took some scissors and cut off the rest of her hair, and she was laughing about it the whole time. She is taking a leave from school, but has decided in the interim to teach herself business and psychology (my mom is a Psycho and my dad has an MBA, so they're loaning her books and knowledge) on her own time. We both are taking the truck camping every chance we get, and just basically enjoying every day to the fullest. Whenever I find myself complaining about a bad day at work, I look at the picture on my desk and everything snaps right back into perspective...
Well, I'm off to make tamales with her non-english-speaking grandma. I'm not on this board much anymore - winter in the mountains means driving the truck, which means I'm focusing more on the ExpeditionPortal lately, but I still wanted to wish everybody a happy and safe holiday...
-tammer
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Mark 88/M5 Houston
- Posts: 8548
- Joined: Feb 12, 2006
- Location: Far North Houston
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Velocewest
- Posts: 1558
- Joined: Feb 12, 2006
- Location: UK
Ben,
Excellent, excellent news! Merry Christmas to Leslie!
If she's continuing chemo, she should expect it to take a little longer to recover each time. Stress to her the importance of getting enough rest and staying on the pain meds. If she's like my wife, she's going to complain about being a lab rat and being over-medicated, but she'll also find that it helps her bounce back faster and feel better during.
Tell Leslie to work the hair -- Jessica did. Nothing turns a situation in your favor like a girl with a bald head! Jessica finished her chemo on 12/6. Next week is PET and CT scans, and she gets her injection port removed.
Excellent, excellent news! Merry Christmas to Leslie!
If she's continuing chemo, she should expect it to take a little longer to recover each time. Stress to her the importance of getting enough rest and staying on the pain meds. If she's like my wife, she's going to complain about being a lab rat and being over-medicated, but she'll also find that it helps her bounce back faster and feel better during.
Tell Leslie to work the hair -- Jessica did. Nothing turns a situation in your favor like a girl with a bald head! Jessica finished her chemo on 12/6. Next week is PET and CT scans, and she gets her injection port removed.
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Tim in N FL
- Posts: 7392
- Joined: Feb 12, 2006
- Location: North Central Florida, USA
- Contact: